United Cerebral Palsy conference information

UCP's "Speak for Yourself" will convene on October 21, 2016, in St. Louis, MO. The one-day conference will offer a chance to discuss having individuals with disabilities advocate for their own healthcare needs, patient-centered outcomes research (PCOR), and play a central role in producing knowledge that can improve choice and health outcomes.

Want to know more about it? Please visit:
https://www.eventbrite.com/e/ucps-speak-for-yourself-convening-october-21-2016-in-st-louis-mo-tickets-27436529398

The everything® parent's guide to special education: A complete step-by-step guide to advocating for your child with special needs

Want to be your child's best advocate in education? Pick up The everything® parent's guide to special education. With it, you will learn how to evaluate, prepare, organize, and get quality services, no matter your child's disability. The handbook gives you the tools you need to navigate the complex world of special education and services.

Interested? Email us at cedir@indiana.edu to check out this resource or use worldcat.org to find it in a library near you.

Possibilities

Possibilities is a video series from the Developmental Disabilities Institute at Wayne State University in Michigan. The video highlights the lives of Emily, Abby, Liz & Greta--four women with disabilities who each have succeeded in their own way in living fulfilling lives through advocacy, support, and most of all--careful planning. Each 4 to 7 minute video highlights one individual's journey, along with their family and friends, and shows the myriad possibilities and options that all people have as they grow up, become independent, and pursue their life's dreams and goals.

Want to check it out? Email us at cedir@indiana.edu.

Sound Sense: Living and Learning with Hearing Loss

Sound sense: Living and learning with hearing loss is a how-to book on daily life skills after a hearing loss. With humor and wit, author Sara Laufer-Batinovich offers insights after losing her own hearing. Guidance on employment strategies, communication tips, fun at the ballpark, and choosing a hearing aid or a cochlear implant can all be found in an easy-to-read format.

Want to know more? Email us at cedir@indiana.edu to check out this title. Or try worldcat.org to find it in a library near you.

The Complete IEP Guide

Looking for a guide to help write an IEP for your child? The complete IEP guide: How to advocate for your special ed child can help! Written in layman's terms, this guide offers practical advice to guide you through the whole IEP process. People have used words like "indispensable," "godsend," "sanity-saver," "essential," "the MOST informative," and more when reviewing this book. Along with a copy of the law, IDEA 1997, there are letters and forms that can be used as is or amended before using.

Interested? Email us at cedir@indiana.edu to check out this title. Not an Indiana resident? No worries! Use worldcat.org to find it in a library near you.

Body & soul: Diana & Kathy

Body & soul: Diana & Kathy is a film about two women, one who has Down syndrome and the other Cerebral Palsy, who decided decades ago to share their lives. The women have become tireless advocates of and lobbyists for people with disabilities. Their fierce desire to live independently and together won out and the friends lived together for 37 years before Kathy's death in 2009.

Interested? Send us an email at cedir@indiana.edu to check out this title. Or try worldcat.org to find it in a library near you.

The Arc of Indiana

Looking for a history of advocacy for people with disabilities? Check out The Arc of Indiana: Yesterday and today, for tomorrow: Celebrating 50 years of advocating for people with developmental disabilities and their families. This 13-minute DVD highlights the Arc of Indiana founders and others sharing their stories and experiences of yesterday and today while looking and planning for tomorrow.

Send us an email at cedir@indiana.edu to check out this title.

SPEAK YOUR MIND!

Rate your community’s implementation of the Americans with Disabilities Act at The Polling Place

People with disabilities, their family members, and their advocates are invited to complete the 2010 ADA POLL, a survey about how Indiana communities are doing with implementation of the ADA. It’s important that your voices are heard when accessibility and discrimination issues are being addressed in your community! So don’t delay – let us know what you have to say!

To request the survey form in an alternative format, or for additional information, contact Dr. Vicki Pappas by phone: 1-800-825-4733 or e-mail: beheard@indiana.edu.

School is Not Supposed to Hurt

School is not supposed to hurt: Investigative report on abusive restraint and seclusion in schools is a 60-page publication by the National Disability Rights Network. The report delves into the inadequacies of legal protection, summaries of prominent cases, and suggestions for the current federal administration to reduce instances of harmful restraint of students with disabilities.

In addition to the public PDF linked above, CeDIR also owns a a copy for lending. Email us for more information if you're an Indiana resident!

Schuyler's Monster

Schuyler's Monster: a father's journey with his wordless daughter is a memoir by Robert Rummel-Hudson. When Robert's daughter Schuyler was 18 months old, she was diagnosed with bilateral perisylvian polymicrogyria--a rare neurological disorder which causes an inability to speak. The book documents Robert's personal growth as he strives to give his daughter a voice and become the father she needs.

Interested in this book? Indiana resident? Contact us!

Not an Indiana resident? Find this book at your local library through WorldCat.

A Guide to Special Education Advocacy

A Guide to Special Education Advocacy: What Parents, Clinicians, and Advocates Need to Know is written by Matthew Cohen, a lawyer with 25 years' experience in special education policy. His book breaks down the ins and outs of disability law and offers effective strategies for parents and advocates to build good working relationships with school system and satisfy their child's needs.


Interested in this book? Indiana resident? Contact us!

Not an Indiana resident? Find this book at your local library here.

Autism Awareness Month

April is Autism Awareness Month! And today is World Autism Awareness Day!

The Autism Society of American lists 8 ways you can help raise awareness during the month of April. Click here to look at this list. My personal favorite is "Get bouncing! After a successful first year, ASA and inflatable playground franchise Pump It Up are bouncing again with “Bounce for Autism” - a nationwide, community-based fundraising event that combines family fun with raising awareness and support for autism in locations that welcome children on the autism spectrum. "

Check out our blog on Autism Resources for more information on Autism. http://iidcautismresources.blogspot.com/

Parenting an Adult with Disabilities

In her book, Parenting an adult with disabilities or special needs : everything you need to know to plan for and protect your child's future, Peggy Lou Morgan gives us words of encouragement, wisdom, and advice from someone who has been there! While letting go of your child as they mature is never easy, for a parent who has a child with a disability, it's even harder. But Morgan believes the most loving thing parents can do is to prepare their children to leave home in a way that works best for them. This guide can help you make sure that your children leave home with confidence!

Interested? Indiana resident? Contact us!

Not a resident of Indiana? Click here to find this item at your local library.

Advocacy Resource Book

Special Needs Advocacy Resource Book: What You Can Do Now To Advocate for Your Exceptional Child's Education by Rich Weinfeld and Michelle Davis teaches parents how to work with schools and achieve optimal learning situations and accommodations for their child's needs. The authors provide parents and professionals with concise, easy-to-understand definitions and descriptions of legal terms and school regulations, along with checklists, tips, questionnaires, and other tools.

Interested in this book and an Indiana resident? Contact us!

Not an Indiana resident? Find this book at your local library!